Project Registry and Outcomes Research

               Project Founder & Leader:  Emmanuel Benjamin                  


  • Problem Statement
    • Many nations are still without patient registries. Therefore, there is no organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure and that serves predetermined scientific, clinical, or policy purpose(s).
  • Aim
    • Registries help improve health care quality and safety.  Set up Registries for comparing the effectiveness of different treatments, evaluating different approaches to a procedure and monitoring the safety of implanted devices.
  • Objective
    • Support building Disease or Patient registries from the ground up to collect secondary data related to patients with a specific diagnosis, condition or procedure and then all play an important role in post marketing surveillance of pharmaceuticals.
  • Solution
    • Partner and collaborate on patient registries across all nations.

If you would like to learn more or be a part of this PFP project, please contact us: