Project Registry and Outcomes Research
Project Founder & Leader: Emmanuel Benjamin
- Problem Statement
- Many nations are still without patient registries. Therefore, there is no organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure and that serves predetermined scientific, clinical, or policy purpose(s).
- Registries help improve health care quality and safety. Set up Registries for comparing the effectiveness of different treatments, evaluating different approaches to a procedure and monitoring the safety of implanted devices.
- Support building Disease or Patient registries from the ground up to collect secondary data related to patients with a specific diagnosis, condition or procedure and then all play an important role in post marketing surveillance of pharmaceuticals.
- Partner and collaborate on patient registries across all nations.